SMA Resources | Melissa Dermody | NeuroAlchemy | Physio

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Spinal Muscular Atrophy (SMA) Resources

This collection of downloadable resources has been curated to help families, caregivers, educators, and healthcare providers access practical, evidence-informed information in one convenient place.

These handouts have been gathered from trusted organizations and expert sources and are shared to make resources easier to find. Credit for each resource remains with the original author or organization where applicable.

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At Home Exercises for SMA

Put together by the Muscular Dystrophy Association and published in 2022 https://www.mda.org/care/resource-list

Human Ribcage Model

Chest Physiotherapy

A brief guide to chest physiotherapy. Please only use with the guidance of a physiotherapist.

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Therapy and SMA

My slides from the Cure SMA Canada Conference on therapy and SMA. Reach out if you have any questions.

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Lower Extremity Stretching

Passive stretching handout put together when I was the physiotherapist on the paediatric neuromuscular team

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Standing Frames

Information about the use of standing frames in SMA.

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Hips in SMA

A brief handout about hip subluxation in SMA with a few suggestions

Child Swimming Pool

Pool Activities

A resource put together by Wave Therapies for the 2018 Cure SMA conference with lots of different ideas

Healthy Breakfast Spread

Nutrition Basics

A resource for nutrition in SMA published by Families of SMA Canada in 2011

https://curesma.ca/resources-spinal-muscular-atrophy-canada/

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Zac's Play Day

A story to aid in the education and awareness of SMA https://www.togetherinsma.com/en_us/home/resources/zacs-play-day-e-book.html

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Travelling with SMA

Travel Resource guide created by Cure SMA

Commercial Airplane In Flight

Air Travel Resource Guide

A list of resources created by Cure SMA

Airplane Landing Sunset

Air Travel Check List

Created by Cure SMA

School Desk Setup

School Accomodations

Suggestions for classroom set up and other school accomodations created by Cure SMA

Woman in Wheelchair

Accessible Home Resources

A guide created by Cure SMA to help with planning for home accessiblity

Accessible Bathtub Design

Bathroom Accomodations

Resource guide created by Cure SMA to help plan bathroom renovations

Contact us to learn more or schedule an appointment.

Email: neuroalchemywellness@gmail.com
Phone: 647-444-9219

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